SANTA CRUZ DE TENERIFE, Nov. 9 (EUROPA PRESS) –
The TeidELA Association has made visible the importance of continuing to coordinate and join forces to improve the lives of people with Amyotrophic Lateral Sclerosis (ALS).
This was the objective of the conference ‘The ELA, a reality in which time’, organized by the Association and whose inauguration was attended by the third vice-president and councilor of Social Action, Marián Franquet; the vice president of TeidELA, Hortensia Hernández, and the general director of programs of the Ministry of Health of the Government of the Canary Islands, Elizabeth Hernández.
Marián Franquet valued TeidELA’s initiative to invite the different administrations to participate in these conferences so that, within their competence framework, they can contribute to improving the quality of life of people affected by this neurodegenerative disease.
“Our intention is to join efforts and continue working with the rest of the administrations and parties involved to guarantee adequate care for people with ALS and provide them with all the specialized resources they need to face this disease in the best possible conditions, which is terribly cruel,” he said.
The counselor took advantage of her speech to announce that her department is working on the design of a new specialized home care service “with which, from 2023, from the Cabildo we want to reinforce our commitment to improve the care provided to people with ALS , in order to guarantee their right to receive adequate attention to their needs”.
In this context, he also recalled that before the end of the year, the Institute of Social and Socio-Sanitary Care of Tenerife (IASS) will begin, through the Insular Society for the Promotion of Persons with Disabilities (Sinpromi), to provide a new specific communication service that, under the name of My eyes fly, will contribute significantly to improving the quality of life of people with ALS.
For her part, the vice president of TeidELA highlighted “the courage, bravery and commitment” of the association’s founder and ALS sufferer, Cati Martín, and stressed the importance of these conferences as a “meeting point with which to continue adding support to make up for the shortcomings of people with ALS and their families and people around them who act as caregivers”.
The general director of programs of the Ministry of Health of the Government of the Canary Islands, Elizabeth Hernández, valued the care provided to patients and stressed the commitment that her department has made to offer a nursing service that serves as a referent and link between relatives and patients with ALS with their health center
The conference, organized with the support of the IASS, the Luzon Foundation and the Canary Islands Health Service, included the development of various presentations and workshops aimed at both health and socio-health professionals as well as family members and caregivers of patients with ALS. It also included the broadcast of a message from former soccer player Juan Carlos Unzué, diagnosed with ALS in 2020, which he encouraged to continue coordinating efforts to make the lives of patients a little better.
