The Council of Tenerife approved this Thursday an institutional motion in which it commits to intensify collaboration with the different entities on the island that work with patients with Amyotrophic Lateral Sclerosis (ALS) and to give a boost to policies that help provide affected people with care that guarantees them a decent quality of life.
In the motion, which was proposed by the Socialist Group, the Congress of Deputies is also urged to process, as soon as possible, the bill presented on December 3, 2021 to guarantee the right to a dignified life of the people with Amyotrophic Lateral Sclerosis (ALS), indicates the Cabildo in a statement.
As explained in the text, this measure will allow establishing other regulatory changes to speed up access for people with ALS to the condition of disability and to benefits, such as the electric social bonus.
With this initiative, the island corporation wants to take a further step in the care it provides to people with ALS, through the collaboration agreement signed with the first Canarian association created for the care of this group, under the name of TeidELA, to which is granted an annual subsidy of 25,000 euros, as part of the Insular Ring of Social Policies.
In addition, from the Insular Society for the Promotion of People with Disabilities (Sinpromi), technical support and advice is provided to people with ALS and their families on communication needs and they are provided with material or support devices on loan.
ALS is the third neurodegenerative disease in incidence after dementia and Parkinson’s, It especially affects people between the ages of 40 and 70, adds the note.
Each year there are two cases per 100,000 inhabitants, with an estimated 4,000 (58% men and 42% women) patients in our country, according to the ALS Observatory of the Luzon Foundation.
Currently, the main objective of treating ALS, for which there is still no cure, is to prolong survival and improve the quality of life of patients through medication and care.